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Doctor at Symposium:
'Malformed children not wanted'
"Getting up to bat in the World Series
with everything depending on you, then
striking out and having everyone in
society boo," is similar to the feeling
experienced by the parents of a severely
malformed child, according to Dr. M.
Neil Macintyre.
Macintyre spoke on Curious Chromo
somes, Congenital Catastrophes and
Constructive Counseling," Monday
night at the School of Life Sciences
Inaugural Symposium. The symposium,
which ends today, featured speakers
from the United States, Great Britain
and Canada.
Macintyre refuted the idea often
presented in "such reputed medical
journals as the Ladies Home Journal"
that "the greatest thing in the world is
having a mongoloid child," who will
somehow "strengthen the family, bring
it together and make wonderful
contributions."-
He stressed the devastating emo
tional impact malformed children have
on their families, the need for family
supportive counseling and the current
lack of such counseling.
Parents hate child
In his own. counseling experience,
Macintyre said he has found that a
couple with a malformed child reacts to
the child by first hating it, then feeling
guilty and eventually going into a deep
depression.
"It is not unnatural or unusual for
couples in this situation to want the
baby to die,", he said. .
Empathy for the child is not an
essential factor, Macintyre said.
Couples with a malformed child display
an equilibrium destroying reaction
pattern, he explained. Communication
between the partners is broken down,
an underlying feeling of blame surfaces
and a negative feeling toward sex adds
to the anxiety of the situation, he said.
Sexual rehabilitation Is an absolute
must in these situations, he said.
Sexuality in our society, which "tends
to freeze our women and make our men
strong and silent," is "adequate at best"
even in normal circumstances, he said.
Having a malformed child is a
"devastating, .destructive blow to our
own ego," he said. "What will people
think of me ('or producing that" is the
reaction common to almost all people
with malformed children, lie said.
Macintyre criticized attitudes , which
assume that the family "will be able to
handle the situation" and that
"everything will work out all right."
'Can't handle It'
"I have yet to meet anyone who can
handle it," he said.
Counseling in this area of human
suffering is not well understood by
medical and other disciplines, and is
long overdue, he said.
"Most people don't think about
malformed children enough to know
what it means to be the parent of one,"
he said.
One In 600 babies born is a
mongoloid, Macintyre said, but people
are usually not aware of this because
95 of these children are never seen.
Some die young, others are
institutionalized and parents are less
likely to take their malformed children
out in public than they are their normal
children, he said.
In counseling, which is essentially
psychotherapy, Macintyre said, the
parents are helped to ."face the facts and
take it from there."
Need another child
In many cases, the parents desire and
need another child, he said. Adoption
doesn't solve the problem, he
continued.
The average time most couples spend
in counseling is six months, Macintyre
said.
State government should be involved
in financing counseling for those who
can't afford it, he said. ,
Prenatal analysis
. ft ; c, w
Macintyre stressed the advantages of
prenatal chromosome analysis, the
process of drawing amniotic fluid and
from it determining by chromosome
examination whether or not a child is
defective. ' '',
In 1965, Macintyre and another
scientist independently succeeded In
performing the first human prenatal
chromosome analysis from cultured
fetal cells.
He criticized persons who "put
analysis down and put It in a bad light
because they think it always leads to
abortion."
In reality, Macintyre said, testing
saves the lives of normal babies who
otherwise would be aborted by parents
fearing the possibility of having a
defective child.
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Wednesday, October 16, 1974
